Long-Term Social Reintegration Outcomes for Burn Survivors With and Without Peer Support Attendance: A Life Impact Burn Recovery Evaluation (LIBRE) Study

LIBRE Advisory Board

doi:10.1016/j.apmr.2017.10.007

Long-Term Social Reintegration Outcomes for Burn Survivors With and Without Peer Support Attendance: A Life Impact Burn Recovery Evaluation (LIBRE) Study

LIBRE Advisory Board

Regenerative Medicine

Research output: Contribution to journal › Article › peer-review

27 Scopus citations

Abstract

Objective: To examine differences in long-term social reintegration outcomes for burn survivors with and without peer support attendance. Design: Cross-sectional survey. Setting: Community-dwelling burn survivors. Participants: Burn survivors (N=601) aged ≥18 years with injuries to ≥5% total body surface area (TBSA) or burns to critical areas (hands, feet, face, or genitals). Interventions: Not applicable. Main Outcome Measures: The Life Impact Burn Recovery Evaluation Profile was used to examine the following previously validated 6 scale scores of social participation: Family and Friends, Social Interactions, Social Activities, Work and Employment, Romantic Relationships, and Sexual Relationships. Results: Burn support group attendance was reported by 330 (55%) of 596 respondents who responded to this item. Attendees had larger burn size (43.4%±23.6% vs 36.8%±23.4% TBSA burned, P<.01) and were more likely to be >10 years from injury (50% vs 42.5%, P<.01). Survivors who attended at least 1 support group scored significantly higher on 3 of the scales: Social Interactions (P=.01), Social Activities (P=.04), and Work and Employment (P=.05). In adjusted analyses, peer support attendance was associated with increased scores on the Social Interactions scale, increasing scores by 17% of an SD (95% confidence interval, 1%–33%; P=.04). Conclusions: Burn survivors who reported peer support attendance had better social interaction scores than those who did not. This is the first reported association between peer support group attendance and improvements in community reintegration in burn survivors. This cross-sectional study prompts further exploration into the potential benefits of peer support groups on burn recovery with future intervention studies.

Original language	English
Pages (from-to)	S92-S98
Journal	Archives of Physical Medicine and Rehabilitation
Volume	101
Issue number	1
DOIs	https://doi.org/10.1016/j.apmr.2017.10.007
State	Published - Jan 2020

Keywords

Burns
Community integration
Rehabilitation
Social support

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10.1016/j.apmr.2017.10.007

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@article{7045530bd7764c7f9c3a754f0ef6fe1a,

title = "Long-Term Social Reintegration Outcomes for Burn Survivors With and Without Peer Support Attendance: A Life Impact Burn Recovery Evaluation (LIBRE) Study",

abstract = "Objective: To examine differences in long-term social reintegration outcomes for burn survivors with and without peer support attendance. Design: Cross-sectional survey. Setting: Community-dwelling burn survivors. Participants: Burn survivors (N=601) aged ≥18 years with injuries to ≥5% total body surface area (TBSA) or burns to critical areas (hands, feet, face, or genitals). Interventions: Not applicable. Main Outcome Measures: The Life Impact Burn Recovery Evaluation Profile was used to examine the following previously validated 6 scale scores of social participation: Family and Friends, Social Interactions, Social Activities, Work and Employment, Romantic Relationships, and Sexual Relationships. Results: Burn support group attendance was reported by 330 (55%) of 596 respondents who responded to this item. Attendees had larger burn size (43.4%±23.6% vs 36.8%±23.4% TBSA burned, P<.01) and were more likely to be >10 years from injury (50% vs 42.5%, P<.01). Survivors who attended at least 1 support group scored significantly higher on 3 of the scales: Social Interactions (P=.01), Social Activities (P=.04), and Work and Employment (P=.05). In adjusted analyses, peer support attendance was associated with increased scores on the Social Interactions scale, increasing scores by 17% of an SD (95% confidence interval, 1%–33%; P=.04). Conclusions: Burn survivors who reported peer support attendance had better social interaction scores than those who did not. This is the first reported association between peer support group attendance and improvements in community reintegration in burn survivors. This cross-sectional study prompts further exploration into the potential benefits of peer support groups on burn recovery with future intervention studies.",

keywords = "Burns, Community integration, Rehabilitation, Social support",

author = "{LIBRE Advisory Board} and Brian Grieve and Shapiro, {Gabriel D.} and Lucy Wibbenmeyer and Amy Acton and Austin Lee and Molly Marino and Alan Jette and Schneider, {Jeffrey C.} and Kazis, {Lewis E.} and Ryan, {Colleen M.} and Karen Badger and Cancio, {Leopoldo C.} and Gretchen Carrougher and Joshua Carson and Damien Carter and Chang, {Philip H.} and Lindsay Deeter and Frederick Edorf and Ali Fagin and Nicholas Faoro and Lee Faucher and Fauerbach, {James A.} and Philip Fidler and Kevin Foster and Jonathan Friedstat and Nicole Gibran and Jeremy Goverman and David Harrington and David Herndon and William Hickerson and Radha Holavanahalli and Abraham Houng and James Hwang and James Jeng and Victor Joe and Nicole Kopari and Karen Kowalske and Robin Lee and Benjamin Levi and Yuk Liu and Tina Palmieri and Bohdan Pomaha{\v c} and Debra Reilly and Kathleen Romanowski and Schulz, {John T.} and Sheridan, {Robert Leo} and Shupp, {Jeffrey W.} and Indranil Sinha and Taryn Travis",

note = "Funding Information: LIBRE Advisory Board Members, Karen Badger, PhD, MSW, University of Kentucky, KY, Leopoldo C. Cancio, MD, University of Texas Health Science Center, TX, Gretchen Carrougher, RN, University of Washington Medicine Regional Burn Center, WA, Joshua Carson, MD, University of Florida, Damien Carter, MD, Maine Medical Center, ME, Philip H. Chang, MD, Shriners Hospitals for Children Cincinnati, OH, Lindsay Deeter, MD, Western States Burn Center, CO, Frederick Edorf, MD, Hennepin County Medical Center, MN, Ali Fagin, MD, University of Arkansas for Medical Sciences, Nicholas Faoro, RN, Brigham & Women's Hospital, MA, Lee Faucher, MD, University of Wisconsin School of Medicine and Public Health, WI, James A. Fauerbach, MD, John Hopkins School of Medicine: Johns Hopkins Burn Center, MD, Philip Fidler, MD, Swedish Medical Center, CO, Kevin Foster, MD, MBA, FACS, Arizona Burn Center, AZ, Jonathan Friedstat, MD, Massachusetts General Hospital, Harvard Medical School, Shriners Hospitals for Children–Boston, MA, Nicole Gibran, MD, University of Washington Medicine Regional Burn Center, WA, Jeremy Goverman, MD, Massachusetts General Hospital, Harvard Medical School, Shriners Hospitals for Children–Boston, MA, David Harrington, MD, Rhode Island Hospital, RI, David Herndon, MD, Shriners Hospitals for Children, Galveston, TX, William Hickerson, MD, University of Tennessee Health Science Center, TN, Radha Holavanahalli, PhD, University of Texas, Southwestern Medical Center, TX, Abraham Houng, MD, Weill Cornell Medical Center, NY, James Hwang, MD, North Carolina Jaycee Burn Center, NC, James Jeng, MD, Mt. Sinai Beth Israel Center, NY, Victor Joe, MD, University of California Irvine, CA, Nicole Kopari, MD, Regions Hospital, MN, Karen Kowalske, MD, University of Texas, Southwestern Medical Center, TX, Robin Lee, MD, Saint Barnabas Medical Center, NJ, Benjamin Levi, MD, University of Michigan Health Systems, MI, Yuk Liu, MD, University of Iowa Hospital/Clinics, IA, Tina Palmieri, MD, Shriners Hospital for Children Northern California, Sacramento, CA and the University of California Davis, Bohdan Pomaha{\v c}, MD, Brigham & Women's Hospital, Harvard Medical School, Boston, MA, Debra Reilly, MD, FACS, The Nebraska Medical Center, NE, Kathleen Romanowski, MD, Shriners Hospital for Children Northern California, Sacramento, CA and the University of California Davis, John T. Schulz, III, MD, Massachusetts General Hospital, Harvard Medical School, Shriners Hospitals for Children–Boston, MA, Robert Leo Sheridan, MD, Massachusetts General Hospital, Harvard Medical School, Shriners Hospitals for Children–Boston, MA, Jeffrey W. Shupp, MD, Medstar Washington Hospital Center, Washington, DC, Indranil Sinha, MD, Brigham & Women's Hospital, Harvard Medical School, Boston, MA, Taryn Travis, MD, Washington Hospital Center, Washington, DC, Lucy Wibbenmeyer, MD, University of Iowa Hospital/Clinics, IA Publisher Copyright: {\textcopyright} 2017 American Congress of Rehabilitation Medicine",

year = "2020",

month = jan,

doi = "10.1016/j.apmr.2017.10.007",

language = "English",

volume = "101",

pages = "S92--S98",

journal = "Archives of Physical Medicine and Rehabilitation",

issn = "0003-9993",

number = "1",

}

TY - JOUR

T1 - Long-Term Social Reintegration Outcomes for Burn Survivors With and Without Peer Support Attendance

T2 - A Life Impact Burn Recovery Evaluation (LIBRE) Study

AU - LIBRE Advisory Board

AU - Grieve, Brian

AU - Shapiro, Gabriel D.

AU - Wibbenmeyer, Lucy

AU - Acton, Amy

AU - Lee, Austin

AU - Marino, Molly

AU - Jette, Alan

AU - Schneider, Jeffrey C.

AU - Kazis, Lewis E.

AU - Ryan, Colleen M.

AU - Badger, Karen

AU - Cancio, Leopoldo C.

AU - Carrougher, Gretchen

AU - Carson, Joshua

AU - Carter, Damien

AU - Chang, Philip H.

AU - Deeter, Lindsay

AU - Edorf, Frederick

AU - Fagin, Ali

AU - Faoro, Nicholas

AU - Faucher, Lee

AU - Fauerbach, James A.

AU - Fidler, Philip

AU - Foster, Kevin

AU - Friedstat, Jonathan

AU - Gibran, Nicole

AU - Goverman, Jeremy

AU - Harrington, David

AU - Herndon, David

AU - Hickerson, William

AU - Holavanahalli, Radha

AU - Houng, Abraham

AU - Hwang, James

AU - Jeng, James

AU - Joe, Victor

AU - Kopari, Nicole

AU - Kowalske, Karen

AU - Lee, Robin

AU - Levi, Benjamin

AU - Liu, Yuk

AU - Palmieri, Tina

AU - Pomahač, Bohdan

AU - Reilly, Debra

AU - Romanowski, Kathleen

AU - Schulz, John T.

AU - Sheridan, Robert Leo

AU - Shupp, Jeffrey W.

AU - Sinha, Indranil

AU - Travis, Taryn

N1 - Funding Information: LIBRE Advisory Board Members, Karen Badger, PhD, MSW, University of Kentucky, KY, Leopoldo C. Cancio, MD, University of Texas Health Science Center, TX, Gretchen Carrougher, RN, University of Washington Medicine Regional Burn Center, WA, Joshua Carson, MD, University of Florida, Damien Carter, MD, Maine Medical Center, ME, Philip H. Chang, MD, Shriners Hospitals for Children Cincinnati, OH, Lindsay Deeter, MD, Western States Burn Center, CO, Frederick Edorf, MD, Hennepin County Medical Center, MN, Ali Fagin, MD, University of Arkansas for Medical Sciences, Nicholas Faoro, RN, Brigham & Women's Hospital, MA, Lee Faucher, MD, University of Wisconsin School of Medicine and Public Health, WI, James A. Fauerbach, MD, John Hopkins School of Medicine: Johns Hopkins Burn Center, MD, Philip Fidler, MD, Swedish Medical Center, CO, Kevin Foster, MD, MBA, FACS, Arizona Burn Center, AZ, Jonathan Friedstat, MD, Massachusetts General Hospital, Harvard Medical School, Shriners Hospitals for Children–Boston, MA, Nicole Gibran, MD, University of Washington Medicine Regional Burn Center, WA, Jeremy Goverman, MD, Massachusetts General Hospital, Harvard Medical School, Shriners Hospitals for Children–Boston, MA, David Harrington, MD, Rhode Island Hospital, RI, David Herndon, MD, Shriners Hospitals for Children, Galveston, TX, William Hickerson, MD, University of Tennessee Health Science Center, TN, Radha Holavanahalli, PhD, University of Texas, Southwestern Medical Center, TX, Abraham Houng, MD, Weill Cornell Medical Center, NY, James Hwang, MD, North Carolina Jaycee Burn Center, NC, James Jeng, MD, Mt. Sinai Beth Israel Center, NY, Victor Joe, MD, University of California Irvine, CA, Nicole Kopari, MD, Regions Hospital, MN, Karen Kowalske, MD, University of Texas, Southwestern Medical Center, TX, Robin Lee, MD, Saint Barnabas Medical Center, NJ, Benjamin Levi, MD, University of Michigan Health Systems, MI, Yuk Liu, MD, University of Iowa Hospital/Clinics, IA, Tina Palmieri, MD, Shriners Hospital for Children Northern California, Sacramento, CA and the University of California Davis, Bohdan Pomahač, MD, Brigham & Women's Hospital, Harvard Medical School, Boston, MA, Debra Reilly, MD, FACS, The Nebraska Medical Center, NE, Kathleen Romanowski, MD, Shriners Hospital for Children Northern California, Sacramento, CA and the University of California Davis, John T. Schulz, III, MD, Massachusetts General Hospital, Harvard Medical School, Shriners Hospitals for Children–Boston, MA, Robert Leo Sheridan, MD, Massachusetts General Hospital, Harvard Medical School, Shriners Hospitals for Children–Boston, MA, Jeffrey W. Shupp, MD, Medstar Washington Hospital Center, Washington, DC, Indranil Sinha, MD, Brigham & Women's Hospital, Harvard Medical School, Boston, MA, Taryn Travis, MD, Washington Hospital Center, Washington, DC, Lucy Wibbenmeyer, MD, University of Iowa Hospital/Clinics, IA Publisher Copyright: © 2017 American Congress of Rehabilitation Medicine

PY - 2020/1

Y1 - 2020/1

N2 - Objective: To examine differences in long-term social reintegration outcomes for burn survivors with and without peer support attendance. Design: Cross-sectional survey. Setting: Community-dwelling burn survivors. Participants: Burn survivors (N=601) aged ≥18 years with injuries to ≥5% total body surface area (TBSA) or burns to critical areas (hands, feet, face, or genitals). Interventions: Not applicable. Main Outcome Measures: The Life Impact Burn Recovery Evaluation Profile was used to examine the following previously validated 6 scale scores of social participation: Family and Friends, Social Interactions, Social Activities, Work and Employment, Romantic Relationships, and Sexual Relationships. Results: Burn support group attendance was reported by 330 (55%) of 596 respondents who responded to this item. Attendees had larger burn size (43.4%±23.6% vs 36.8%±23.4% TBSA burned, P<.01) and were more likely to be >10 years from injury (50% vs 42.5%, P<.01). Survivors who attended at least 1 support group scored significantly higher on 3 of the scales: Social Interactions (P=.01), Social Activities (P=.04), and Work and Employment (P=.05). In adjusted analyses, peer support attendance was associated with increased scores on the Social Interactions scale, increasing scores by 17% of an SD (95% confidence interval, 1%–33%; P=.04). Conclusions: Burn survivors who reported peer support attendance had better social interaction scores than those who did not. This is the first reported association between peer support group attendance and improvements in community reintegration in burn survivors. This cross-sectional study prompts further exploration into the potential benefits of peer support groups on burn recovery with future intervention studies.

AB - Objective: To examine differences in long-term social reintegration outcomes for burn survivors with and without peer support attendance. Design: Cross-sectional survey. Setting: Community-dwelling burn survivors. Participants: Burn survivors (N=601) aged ≥18 years with injuries to ≥5% total body surface area (TBSA) or burns to critical areas (hands, feet, face, or genitals). Interventions: Not applicable. Main Outcome Measures: The Life Impact Burn Recovery Evaluation Profile was used to examine the following previously validated 6 scale scores of social participation: Family and Friends, Social Interactions, Social Activities, Work and Employment, Romantic Relationships, and Sexual Relationships. Results: Burn support group attendance was reported by 330 (55%) of 596 respondents who responded to this item. Attendees had larger burn size (43.4%±23.6% vs 36.8%±23.4% TBSA burned, P<.01) and were more likely to be >10 years from injury (50% vs 42.5%, P<.01). Survivors who attended at least 1 support group scored significantly higher on 3 of the scales: Social Interactions (P=.01), Social Activities (P=.04), and Work and Employment (P=.05). In adjusted analyses, peer support attendance was associated with increased scores on the Social Interactions scale, increasing scores by 17% of an SD (95% confidence interval, 1%–33%; P=.04). Conclusions: Burn survivors who reported peer support attendance had better social interaction scores than those who did not. This is the first reported association between peer support group attendance and improvements in community reintegration in burn survivors. This cross-sectional study prompts further exploration into the potential benefits of peer support groups on burn recovery with future intervention studies.

KW - Burns

KW - Community integration

KW - Rehabilitation

KW - Social support

UR - http://www.scopus.com/inward/record.url?scp=85040340113&partnerID=8YFLogxK

U2 - 10.1016/j.apmr.2017.10.007

DO - 10.1016/j.apmr.2017.10.007

M3 - Article

C2 - 29097179

AN - SCOPUS:85040340113

SN - 0003-9993

VL - 101

SP - S92-S98

JO - Archives of Physical Medicine and Rehabilitation

JF - Archives of Physical Medicine and Rehabilitation

IS - 1

ER -

Long-Term Social Reintegration Outcomes for Burn Survivors With and Without Peer Support Attendance: A Life Impact Burn Recovery Evaluation (LIBRE) Study

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Keywords

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